@Article{Videm_etal2017,
author="Videm, V.
and Thomas, R.
and Brown, M. A.
and Hoff, M.",
title="Self-reported Diagnosis of Rheumatoid Arthritis or Ankylosing Spondylitis Has Low Accuracy: Data from the Nord-Trondelag Health Study",
journal="The Journal of Rheumatology",
year="2017",
volume="44",
number="8",
pages="1134--1141",
optkeywords="Ankylosing Spondylitis; Epidemiology; Rheumatoid Arthritis",
abstract="OBJECTIVE: Self-reported diagnoses of inflammatory arthritis are not accurate. The primary study aim was to ascertain self-reported diagnoses of rheumatoid arthritis (RA) and ankylosing spondylitis (AS) in the Norwegian population-based Nord-Trondelag Health Study (HUNT) using hospital case files. The secondary aim was to provide updated estimates of the prevalence and incidence of RA and AS. METHODS: All inhabitants >/= 20 years old from the county of Nord-Trondelag were invited. Data from 70,805 unique participants from HUNT2 (1995-1997) and HUNT3 (2006-2008) were included. For participants who self-reported RA or AS, case files from all 3 hospitals in the catchment area were evaluated using standardized diagnostic criteria. RESULTS: Of 2703 self-reported cases of RA, 19.1{\%} were verified in hospital files. Of 1064 self-reported cases of AS, 15.8{\%} were verified. Of 259 cases self-reporting both RA and AS, 8.1{\%} had RA and 5.4{\%} had AS. Overall, a self-report of 1 or both diagnoses could not be verified in 82.1{\%}, including 22.8{\%} with insufficient information or no case file. The prevalence of RA was 768 (95{\%} CI 705-835) per 100,000. The incidence of RA from HUNT2 to HUNT3 was 0.48 (0.41-0.56) per 1000 per year. The prevalence of AS was 264 (228-305) per 100,000. The incidence of AS from HUNT2 to HUNT3 was 0.19 (0.15-0.24) per 1000 per year. CONCLUSION: Self-reported diagnoses of RA and AS are often false-positive. The prevalence and incidence of RA were comparable to reports from similar populations. The incidence of AS was higher than previously reported in a mixed population from Norway.",
optnote="PMID:28412703",
optnote="exported from refbase (http://vev.medisin.ntnu.no/refbase/show.php?record=2001), last updated on Fri, 02 Feb 2018 16:16:29 +0100",
issn="0315-162X",
doi="10.3899/jrheum.161396",
opturl="http://www.ncbi.nlm.nih.gov/pubmed/28412703",
opturl="https://doi.org/10.3899/jrheum.161396",
language="English"
}